Update

Update for today has two parts. First, the sonogram showed the tumor has grown again, which is bad news. It is pressing on her heart again, but there are still no hydrops which in English means her life is not in danger. If during a sonogram they find hydrops I will go straight to Houston to have the surgery. I know if it sounds like Chinese to me, it certainly does to you. It's hard to believe but this was not the worst news I got today.

Monday when we took Charlie in and heard her wheezing I found out she might have asthma. We've been giving her breathing treatments every 4-6 hours since then and this morning at 3 a.m. I went in to check on her because she was crying/coughing and she had 102.5 fever. The events that led up to the pediatrician's office visit are hilarious but I don't have the energy to type it all out right now--I will in coming days. I had the chance to think through the course of action with Sean before he left for his trip at 7:30 this morning. Got in to see Dr. Fowers at 9:15 and she ordered a chest x-ray and flu test because Charlie was really wheezing by then. We found out she has pneumonia and also had an asthma attack. She got worse and worse while we were in the office, (so glad I was already there!) and they gave her two shots of antibiotic, two breathing treatments with/of steroids, and took blood. We are back home now and she is trying to sleep. The office just called and her white blood count is normal. I take her back in tomorrow morning and if she is not better we will go to Children's again to do a full work-up of bloodwork and start monitoring her. The breathing treatments in the office did not help her wheezing, which bothered the Dr. but she said she knew I'd be back in a second if she got any worse. You bet your hiney I would be! 

My mom met me at the office with the kids so that I could go to my sonogram (kids aren't allowed in the perinatologist office ??) and she is here now. Sean is on a flight back home. Honestly I am hanging by a thread. This is certainly not any worse than anything you are going through in your own life but it is a lot in the last month for us to understand. We continue to be hopeful and thankful for our health so we can take care of the kids. We are just so tired!! Please continue to pray for Joy's tumor to shrink, as adding being away from the kids for 10 days-a few months if I have to do the surgery seems unbearable right now given that Charlie is sick again. God is still on the throne...and He is the same today as He was yesterday.